Institute for Palliative Care
Publications

Digital health competence among healthcare professionals

K. Mikkonen, M. Tomietto, J. J. Lee, F. Ye, P. Mandysova, J. Pekara, J. Kommusaar, M. Kangasniemi, X. Liao, G. Cicolini, V. Simonetti, J. Unsworth, M. F. Vizcaya-Moreno, M. Domingo-Pozo, M. F. Liu, M. Yamakawa, M. Utsumi, F. Domeisen Benedetti, A. Fringer, T. A. Hanssen, A. N. Hagen, N. L. Stock, J. Andersson, J. Hallgren, A. Egger-Rainer, P. Paal, O. Riklikiene, A. Grochowska, A. Stefanowicz-Kocol, R. Ramos, P. Macalintal, B. F. Y. Woo, W. S. W. Tam, W. Zhou, E. Jarva , Healthcare; digital health; PROFESSIONALS; COMPETENCE; Cluster analysis;

Mapping end-of-life care for patients with neurological conditions in German hospices

Sarah Bublitz, Stefan Lorenzl, André Klima, Susann Schmidt, Benno Schäffer, Sabine Gleich

Documented End-of-Life Preferences of People With Parkinson's Disease or Parkinsonism Across Europe

, Bauke W Dijkstra, Catharina Muente, Michela Garon, Kristina Rosqvist, Monica Scharfenort, Katharina M Lex, Philip Poku, Eirini Nixina, Pille Taba, Ülle Krikmann, Katrin Sikk, Katie Flanagan, Anette E Schrag, Spyros Konitsiotis, Miltiadis Makrydimas, Stefan Lorenzl, Per Odin, David J Pedrosa, Kris C P Vissers, Marieke M Groot, Bastiaan R Bloem, Marjan J Meinders, Angelo Antonini

Forschungs- und Praxisprojekt: Spezialisierte Seelsorge in der Neurologie - SpeS Neuro

Benno Littger, Stefan Lorenzl, Sarah Bublitz, Thomas Hagen, Regina Sachse

Progressive Supranuclear Palsy - A Global Review

Prashanth Lingappa Kukkle, Rosy Neupane, Alexandar Pantelyat, Anne-Marie Wills, Ed Jabbari, Elise G P Dopper, Gabor G Kovacs, Gunther Hoglinger, Ikuko Aiba, Irene Litvan, Jacky Ganguly, Jennifer L Whitwell, Jinghong Ma, Kigocha Okeng'O, Ryuji Skakibara, Shelley Forrest, Stefan Lorenzl, Yared Zenebe Zewde, Yaroslau Compta, Huw R Morris,

Hirngesundheit ist kein Hirngespinst

Doris de Causmaecker, Stefan Lorenzl

Motor and non-motor fluctuations in Parkinson's disease

Martin Regensburger, Ilona Csoti, Wolfgang H. Jost, Zacharias Kohl, Stefan Lorenzl, David J. Pedrosa, Paul Lingor , MANAGEMENT; DOUBLE-BLIND; SYMPTOMS; QUALITY-OF-LIFE; MULTICENTER; Wearing-off; Patient questionnaire; Wearable sensors; Levodopa therapy; Rotigotine;

“The Chaplain was Part of the Team and Not Just a Component you Bring in Occasionally”

Sarah Bublitz, Benno Littger, Stefan Lorenzl, Piret Paal , PALLIATIVE CARE; Spiritual care; Amyotrophic lateral sclerosis; Neuropalliative care; chaplaincy; Motoneuron disease;

MeDeMSA care study protocol: developing personalized best medical care with integrated mobile palliative and telemedicine support for individuals with multiple system atrophy

Alessandra Fanciulli, Bianca Caliò, Svenja Schmidt, Georg Goebel, Fabian Leys, Karoline Radl, Caroline Breitegger, Marjan Arvandi, Alexa Blum, Christoph Gabl, Oliver Galvan, Achim Herms, Birgit Högl, Bernhard Holzner, Frank Jagusch, Stefan Kiechl, Andrea Knoflach-Gabis, Mariella Koegl, Igor Kuchin, Stefan Lorenzl, Werner Poewe, Sinikka Prajczer, Gerhard Rumpold, Andreas Schlager, Anette Schrag, Klaus Seppi, Uwe Siebert, Gudrun Schönherr, Gaby Sroczynski, Martina Schmidhuber, Petra Schwingenschuh, Beate Jahn, Florian Krismer, Gregor K Wenning

Early thinking palliative care for people with Parkinson's disease: A thematic synthesis based on a systematic mixed-methods review

Michela Garon, Christiane Weck, Valentina Leta, Bauke W Dijkstra, Catharina Muente, Giovanni Gentile, Dhaval Trivedi, Marieke M Groot, Stefan Lorenzl, Per Odin, Spyridon Konitsiotis, David J Pedrosa, Dimitrios I Fotiadis, Marjan J Meinders, Bastiaan R Bloem, Anette E Schrag, Laura Grover, Pille Taba, K Ray Chaudhuri, Angelo Antonini, Piret Paal

Head position control strategies in progressive Supranuclear Palsy versus Idiopathic Parkinson's Disease during dynamic-on-static platform tilt

Stefan Kammermeier, Kathrin Maierbeck, Lucia Dietrich, Annika Eissner, Stefan Lorenzl, Arun Singh, Kai Bötzel, Christoph Maurer

Closing Gaps: A qualitative analysis of participanClosing Gaps: A Qualitative Analysis of Participants’ Self-Reported Educational Gains and Outcomes After an International E-Learning Course in Neuropalliative Carets’ self-reported educational gains and outcomes after an international e-learning course in neuropalliative care (P12-5.015)

Sarah Bublitz

'Nurses as Gatekeepers'

Reinhard Grabenweger, Daniela Voelz, Elisabeth Bumes, Megan Best, Piret Paal , NEUROSURGERY; Nursing; Spiritual care; BRAIN CANCER; Vignette study;

“Every Day was the same, Equally Difficult”—A Qualitative Exploration of Bereaved Caregivers’ Ethical Dilemmas in Caring for a Family Member with Amyotrophic Lateral Sclerosis

Sarah Bublitz, Benno Littger, Andrea Tsitsinias, Stefan Lorenzl, Piret Paal

Erste Daten zum DGM-geförderten Projekt „Defizite und Verbesserungspotential in der psychosozialen und palliativen Versorgung von ALS-Patient:innen in Deutschland“

Sarah Bublitz

Correction: "The patient as teacher" - thematic analysis of undergraduate medical students' experiences with an experiential learning project in palliative care

Stephanie Stocklassa, Susan Block, Piret Paal, Frank Elsner

Assessment of the spiritual needs of people with Amyotrophic Lateral Sclerosis and their caregivers

Cornelia Brandstötter, Arndt Büssing, Magdalena Eham, Benno Littger, Stefan Lorenzl, Manuel Memmel, Piret Paal, Sarah Kristina Bublitz

Cultivating excellence in palliative care education and training

Piret Paal, Stephen Mason, Philip Larkin, Minna Hoekkae, Guillaume Economos, Leszek Pawlowski, Sandra Martins Pereira, Pablo Hernandez-Marrero, Gil Goldzweig , Collaborative dynamics; Palliative care education and training; Social network analysis;

Technik und die hospizliche Haltung im ambulanten Bereich - Chancen und Grenzen

Stefan Lorenzl, Christiane Weck

Exploring spirituality in everyday neuro-oncology practice - nurses' and physicians' spiritual care toolbox

Daniela Voelz, Reinhard Grabenweger, Megan C. Best, Peter Hau, Kate F. Jones, Ralf Linker, Piret Paal, Elisabeth Bumes , Brain tumor | neuro-oncology | spiritual care | toolbox | vignette;