Research & Innovation
Publications

Harmonization of outcomes in epidermolysis bullosa

#2023

#BRITISH JOURNAL OF DERMATOLOGY

PMU Authors
Martin Laimer, Verena Wally, Tobias Welponer

All Authors
Eva W. H. Korte, Phyllis Spuls, Peter C. van den Akker, Dimitra Kiritsi, Martin Laimer, Anna M. G. Pasmooij, Rainer Riedl, Elizabeth Vroom, Verena Wally, Tobias Welponer, Maria C. Bolling

Journal association
BRITISH JOURNAL OF DERMATOLOGY

Abstract

The COSEB kick-off meeting was organized in April 2023, and highlighted the stakeholder perspectives on the unmet and urgent need to work towards reasonable harmonization of outcome measurement in epidermolysis bullosa (EB) by developing core outcome sets for the different EB types. Standardized and uniform outcome assessment holds great promise to reduce selective reporting, improve the comparability and pooling of treatment outcomes, and enhance the efficacy of future research in EB.

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Paracelsus Medical Private University (PMU) Research & Innovation Publications

Harmonization of outcomes in epidermolysis bullosa