Research & Innovation
Publications
Towards a roadmap for COSEB
PMU Authors
Verena Wally, Tobias Welponer, Martin Laimer
All Authors
Eva W. H. Korte, Anna M. G. Pasmooij, Maria C. Bolling, Sinead Hickey, Sagair Hussain, Dimitra Kiritsi, Jan Kottner, Cecilia A. C. Prinsen, Angelique Sauvestre, Gaston Sendin, Phyllis Spuls, Nuria Tarrats, Verena Wally, Tobias Welponer, Martin Laimer, Peter C. van den Akker,
Journal association
BRITISH JOURNAL OF DERMATOLOGY
Abstract
The COSEB initiative aims for standardized and uniform measurement by developing core outcome sets for epidermolysis bullosa. This report describes the COSEB workshop organized in December 2023, which led to a broad stakeholder consensus-based roadmap. Moreover, it highlights novel features of COSEB, including the pro-active engagement of stakeholders from the very beginning and the appointment of a multi-stakeholder advisory panel.